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- Seeking dr in St Louis, MO - Ehlers-Danlos Syndromes - Inspire
Hello , I'm new on here I'd like to find a good Ehlers Danlos specialists in St Louis, MO I was just diagnosed with hyper mobility syndrome and my
- EDS doctor in Buffalo, NY - Ehlers-Danlos Syndromes - Inspire
Please if anyone knows of a doctor in or near Buffalo NY, i need to know I am desperate to find an expert in this field Thanks all
- Office Chair Suggestions? - Ehlers-Danlos Syndromes - Inspire
Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders EDS HSD Support Community The Ehlers-Danlos Society EDS Global Patient Registry HEDGE Study Helpline Join Inspire Create post
- heart murmur and palpitations - Ehlers-Danlos Syndromes - Inspire
I was recently diagnosed w EDS II III, which explains so many problems I have been experiencing and treating individually for nearly 20 years (47 yrs old now) One of which is heavy heart palpitations My heart has major spasms and feels like it's jumping out of my upper mid chest up to my lower left throat
- Consistently Tight Muscles - Ehlers-Danlos Syndromes - Inspire
Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders EDS HSD Support Community The Ehlers-Danlos Society EDS Global Patient Registry HEDGE Study Helpline Join Inspire Create post
- Physicians in North Carolina - Ehlers-Danlos Syndromes - Inspire
I need help finding some physicians in NC or SC that have experience with EDS Neurologist, General, orthopedics would be lovely
- MYH11 deletion - Ehlers-Danlos Syndromes - Inspire
MYH11 is not a gene generally thought to be related to EDS As you found, it is linked to aortic aneurysm There are a couple of CTDs that have elevated risk of aneurysm, in particular Marfan and Loeys-Dietz syndromes, so screening important when assessing people for them MYH11 problems can also occur on their own Of course, it is entirely possible to have hEDS and also a nasty variant in
- Use of Biologics to treat inflammation with EDS?
My EDs comes with dysautonomia, and MCAS, which can can cause demyelination issues… among other things, then it’s a bad cycle, and all your spots of previous injury are exacerbated… I mean, inflammation underlies a LOT of problems, and if you have damaged joints, it really is a bad spiral
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