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- GBS-chance of recurrence - GBS|CIDP Foundation International Forums
I had GBS – Miller Fisher Variant in 1997 when I was a teenager, we don’t know what caused my GBS it was either infection or vaccine since both happened at that time Would it still be very rare to get GBS a second time around with this medicine, or would I be “playing with fire” in this case?
- Forums Archive - GBS|CIDP Foundation International Forums
A place for forum uses to find help and support or to post comments and questions about the GBS-CIDP Foundation International Forums
- Community Forums - GBS|CIDP Foundation International Forums
A place for forum uses to find help and support or to post comments and questions about the GBS-CIDP Foundation International Forums
- Axonal Guillan Barre (AMAN) - GBS\|CIDP
Hello! I’m reaching out to the few of us that have been diagnosed with the AMAN form of Guillan Barre (Acute Axonal Motor Neuropathy ) I say the “few of us” because from what I know, we are the exceedingly rare form of Guillan Barre… perhaps 3,000 cases world-wide and most of them are in Asia The viral nervous system damage we suffered is due to an attack on our actual nerves (axons
- Effects of GBS over 2 years later
Hello, I had GBS and was hospitalized for two weeks in August of 2015 Recovery took a long time Now, 2 years and 4 months later, I have concerns that I can’t find a concrete answer on I still experience muscle soreness and pain, in my knees and down to my feet, and in my forearms and hands At times, my hands can be very shaky, especially in my fingers Also when doing physical things
- For those who get regular IVIG infusions, how often do you . . . - GBS\|CIDP
Just out of curiosity, for those who get regular IVIG treatments for their CIDP, how often do you get them? Once a week, once a month? Do you feel that such a maintenance keeps symptom free or something close to it? Thanks, Bryan
- Who Has the BEST CIDP Doctor and Where???? - GBS|CIDP Foundation . . .
Word of mouth is the best way to accomplish lots of things I am looking for an alternate CIDP doctor I am willing to Fly but Prefer NE USA Looking for a take action type doctor that is highly skilled with treatment regiment for CIDP A doctor that does not give up and takes a high level of personal interest in the treatment of their patients Who is your Doctor and why do you like Him or
- Flare Up at 6 months post GBS diagnosis - GBS\|CIDP
I was admitted on October 6, 2016 with advanced GBS I spent 4 weeks in ICU on a ventilator receiving IVIG during that time and then an additional 4 weeks in rehabilitation hospitals before returning home for outpatient therapy The 6th of April was 6 months since I was admitted About 4 days ago (April 11) I started to struggle with tingling in my feet again It has since spread up to my
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