|
- GBS-chance of recurrence - GBS|CIDP Foundation International Forums
I had GBS – Miller Fisher Variant in 1997 when I was a teenager, we don’t know what caused my GBS it was either infection or vaccine since both happened at that time Would it still be very rare to get GBS a second time around with this medicine, or would I be “playing with fire” in this case?
- Axonal Guillan Barre (AMAN) - GBS\|CIDP
Hello! I’m reaching out to the few of us that have been diagnosed with the AMAN form of Guillan Barre (Acute Axonal Motor Neuropathy ) I say the “few of us” because from what I know, we are the exceedingly rare form of Guillan Barre… perhaps 3,000 cases world-wide and most of them are in Asia The viral nervous system damage we suffered is due to an attack on our actual nerves (axons
- Effects of GBS over 2 years later
Hello, I had GBS and was hospitalized for two weeks in August of 2015 Recovery took a long time Now, 2 years and 4 months later, I have concerns that I can’t find a concrete answer on I still experience muscle soreness and pain, in my knees and down to my feet, and in my forearms and hands At times, my hands can be very shaky, especially in my fingers Also when doing physical things
- Forums Archive - GBS|CIDP Foundation International Forums
A place for forum uses to find help and support or to post comments and questions about the GBS-CIDP Foundation International Forums
- Community Forums - GBS|CIDP Foundation International Forums
A place for forum uses to find help and support or to post comments and questions about the GBS-CIDP Foundation International Forums
- Flare Up at 6 months post GBS diagnosis - GBS\|CIDP
I was admitted on October 6, 2016 with advanced GBS I spent 4 weeks in ICU on a ventilator receiving IVIG during that time and then an additional 4 weeks in rehabilitation hospitals before returning home for outpatient therapy The 6th of April was 6 months since I was admitted About 4 days ago (April 11) I started to struggle with tingling in my feet again It has since spread up to my
- Cold weather and muscle weakness - GBS\|CIDP
Has anyone had the experience that their muscle weakness increases as the weather gets colder? We are having an early cold snap and I seem to be weaker than normal This seems to be effecting my balance as well Any suggestions
- Oregon City a GBS Cluster?
Because GBS isn’t supposed to occur in clusters this is pretty strange, at first glance When I talked with the lady from CDC, she said Oregon City has a pretty strange looking cluster of GBS as well as a whole host of other odd health problems including Polio, measles, mumps and Scarlet Fever
|
|
|