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Patient and Caregiver Support Programs for EB - DEBRA Learn More debra Care Conference This multi-day biennial conference is designed specifically for EB families and the professional community to access the best information, discover new ideas, and connect with other EB families from all over the country Learn More EB Doctor Directory Finding a doctor who knows EB is an all-too-common challenge
DEBRA International | debra of America debra of America is part of DEBRA International, a worldwide network of national groups working on behalf of all people living with Epidermolysis Bullosa (EB) Our collective vision is to ensure that people living with EB have access to the best quality support and medical care, while also driving the development of effective treatments and
Understanding Epidermolysis Bullosa (EB) | debra of America Epidermolysis Bullosa (EB) is a group of rare and complex genetic disorders that make the body’s largest organ, the skin, incredibly fragile Everyday activities—like walking, eating, or holding a pencil—can cause painful, recurrent blisters and widespread open wounds EB can also affect the mouth, eyes, esophagus, and other internal organs, leading to complications that may impact
debra debra of America is a national nonprofit organization dedicated to improving the lives of those impacted by Epidermolysis Bullosa (EB) We integrate direct-to-patient programs and services, education, advocacy, close partnership with treatment developers, and research funding to foster meaningful change for those living with EB
What We Do - debra of America Founded in 1980, debra of America is dedicated to improving the quality of life of all people impacted by Epidermolysis Bullosa (EB) in the U S Learn more about our work