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Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders - Inspire The Ehlers-Danlos Syndromes and Related Disorders Support Community connects patients, families, friends and caregivers for knowledge, support and inspiration This community is sponsored by the Ehlers-Danlos Society, an Inspire trusted partner
Workplace Accommodations - Ehlers-Danlos Syndromes - Inspire Ask if you have any other questions Another GREAT place to get others to help answer questions is FACEBOOK Go to the EDS page or the ehlers-danlos national foundation page You'll find more people there with EDS than you can talk to in a year!! They are wonderful, helpful, caring, etc I'm glad I found it! Best of luck!!! E-mail if you want
Physicians in North Carolina - Ehlers-Danlos Syndromes - Inspire The Ehlers-Danlos Society's Healthcare Professionals Directory is a great place to start when looking for providers in your area who have experience with EDS and HSD I also recommend checking out their Support Group and Charity Directory and searching for regional Facebook groups for people with EDS and HSD These groups can be super helpful
2025 Global Learning Conference - Ehlers-Danlos Syndromes - Inspire Join other individuals and families with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) for up to three days of learning, collaboration, and networking The conference theme is "Teamwork", emphasizing the importance of multidisciplinary collaboration in managing EDS and HSD symptoms and comorbidities
I found a hypermobile EDS doctor in Oklahoma City The therapy was $11,000 and it didn't help as much as I hoped There was some improvement in pain, but more pain with the tightness But EDS is chronic and probably will always bother me i n some way, unfortunately
Tucson, Arizona Ehlers-Danlos Doctors - Ehlers-Danlos Syndromes - Inspire I felt cared for and they answered all my questions, as well as referring me for a cardiac workup, etc Dr Gall is, I think, 73, and his main focus is on educating rheumatologists to be aware of certain disorders, especially EDS and related things
EDS Specialists Colorado - Ehlers-Danlos Syndromes - Inspire I have my own doctors in Boulder county that work better for me on EDS I used to go to a pain management specialist in Thornton He is aware of EDS His referrals are great At this point I just see my internist for everything He does know about EDS He also listens well and accepts my research I just found out he has another EDS patient who
How does eds affect your sinuses? - Ehlers-Danlos Syndromes - Inspire I've gone to Dr Harrison for 15 years and he diagnosed me with EDS (albeit, last year) He's good I put him on the list But in listening to your problem, it sounds like Dr Maitland is the way to go She is the EDS champion She is now getting a steady stream of EDS patients And everyone is leaving happy to have seen her
Popping and Cracking - Ehlers-Danlos Syndromes - Inspire My son, (EDS III) systematically cracks his knuckles every morning when he wakes up I think I first noticed it when he was in fourth grade, soon after he started having other symptoms of something-being-very-wrong I once asked him why he felt it was necessary to crack his knuckles every morning, but he couldn't explain it