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Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders - Inspire The Ehlers-Danlos Syndromes and Related Disorders Support Community connects patients, families, friends and caregivers for knowledge, support and inspiration This community is sponsored by the Ehlers-Danlos Society, an Inspire trusted partner
2025 Global Learning Conference - Ehlers-Danlos Syndromes - Inspire Join other individuals and families with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) for up to three days of learning, collaboration, and networking The conference theme is "Teamwork", emphasizing the importance of multidisciplinary collaboration in managing EDS and HSD symptoms and comorbidities
23 and me Col3A1 - Ehlers-Danlos Syndromes - Inspire Hello Getbent, Just be aware that while EDS, Vascular type is caused by a genetic mutation on COL3A1, so are some with EDS, Hypermobility type caused by a different mutation on COL3A1 And then there are also mutations on COL3A1 which are not known to cause any problems at all So having a result that suggests there may be a genetic mutation on COL3A1 does not automatically mean you have VEDS
How does eds affect your sinuses? - Ehlers-Danlos Syndromes You have EDS and allergies and can get GERD treated there if it has an immune system basis If you have mast cell, you will more than likely have GERD at some point in your life
General Discussion about Alcohol with EDs - Inspire General Discussion about Alcohol with EDs General discussion Hello to the brave EDS community, I am very intrigued to hear from the EDS community about people's attitudes and consumption of alcohol Are you comfortable with consuming alcohol at all? Do you think in terms of a 'limit' on alcohol consumption Or are you able to drink freely?
I found a hypermobile EDS doctor in Oklahoma City Fleak_eds Mar 6, 2024 • 9:18 AM Omg I live in OKC and have been looking for one! Thank you so much for this!! Game changer! I have been going to Florida for appts!
Popping and Cracking - Ehlers-Danlos Syndromes - Inspire One night out of frustration, I did a long search on popping, cracking, or "crepitation" (the medical term), and finally came across some folks with EDS describing this A big ah ha moment that I took back to my rheumy, who then sent me to a geneticist, and there we go--mystery solved