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Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders - Inspire The Ehlers-Danlos Syndromes and Related Disorders Support Community connects patients, families, friends and caregivers for knowledge, support and inspiration This community is sponsored by the Ehlers-Danlos Society, an Inspire trusted partner
Common ethnic origins with EDS? - Ehlers-Danlos Syndromes - Inspire EDS genetically inherited from my father This mutated gene has found its way to people of all colors and combinations all across the world My mom thought it was an Asian (and Native American) tendency because Asians tend to have more flexible collagen
Maryland EDS Doctors - Ehlers-Danlos Syndromes - Inspire She is also a proponent of the EDS team approach So, she has a cadre of Maryland specialists to whom she refers her patients for MCAS, POTS, dysautonomia and other EDS associated needs like prolotherapy, TMD, or orthopedic surgery Just a reminder, Dr Z does not take insurance and payment is due at the time of service
Physicians in North Carolina - Ehlers-Danlos Syndromes - Inspire The Ehlers-Danlos Society's Healthcare Professionals Directory is a great place to start when looking for providers in your area who have experience with EDS and HSD I also recommend checking out their Support Group and Charity Directory and searching for regional Facebook groups for people with EDS and HSD These groups can be super helpful
How does eds affect your sinuses? - Ehlers-Danlos Syndromes - Inspire I've gone to Dr Harrison for 15 years and he diagnosed me with EDS (albeit, last year) He's good I put him on the list But in listening to your problem, it sounds like Dr Maitland is the way to go She is the EDS champion She is now getting a steady stream of EDS patients And everyone is leaving happy to have seen her
EDS doctor in Pittsburgh, Pa. - Ehlers-Danlos Syndromes - Inspire Does anyone know of a good EDS Doctor in Pittsburgh, PA Hello Marlagrom, There is not one doctor or one type of medical specialty who is able to investigate or treat all the symptoms Ehlers-Danlos Syndromes (EDS) can cause as well as the common co-morbidities seen in those with EDS, such as Postural Orthostatic Tachycardia Syndrome (POTS) or Mast Cell Activation Syndrome (MCAS)
Steroids and EDS - Ehlers-Danlos Syndromes - Inspire I wouldn't want to tell doctors that people with EDS can NEVER get fluoroquinolones because some might get adverse effects--there might be someone with EDS who has a terribly serious infection which isn't going to respond to some other antibiotic Then it just may be worth the risk of taking the fluoroquinolone
EDS and aging - Ehlers-Danlos Syndromes - Inspire Here is my take Eds itself is a non progressive disease But it leads to other secondary problems like Dysautonomia, bursitis, tendinitis, tears dislocations ect that as they accumulate over the years cause more and more pain and damage
How to differentiate between dyspraxia and EDS? - Inspire I don't have EDS I was just curious with the difference, and I know dyspraxia is really common with EDS I was asking the question because it can be difficult to tell the difference sometimes I am both autistic and dyspraxic, and dyspraxia is a common comorbidity to autism But the thing is, I am not hypermobile, which is a rarity with dyspraxia
EDS and Cancer - Ehlers-Danlos Syndromes - Inspire There are only 3 case studies on breast cancer This is a HUGE gap in knowledge for treating EDS patients who have cancer and in knowing how the cancer may progress Cancer research already knows that tissue morphology play a role in how tumors spread EDS patients of all types have different tissue compared to non-EDS people