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Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders - Inspire The Ehlers-Danlos Syndromes and Related Disorders Support Community connects patients, families, friends and caregivers for knowledge, support and inspiration This community is sponsored by the Ehlers-Danlos Society, an Inspire trusted partner
Steinbergs sign, positive or not and does a boderline . . . - Inspire To be accurately assessed for Hypermobile EDS (hEDS) or other types of EDS and genetic connective tissue disorders, you need to see a Geneticist experienced with these We cannot accurately tell you if you do meet diagnostic criteria or not In Criterion 2, Feature A, a person needs to meet at least 5 out of the 12 criteria to meet that Feature
23 and me Col3A1 - Ehlers-Danlos Syndromes - Inspire Hello Getbent, Just be aware that while EDS, Vascular type is caused by a genetic mutation on COL3A1, so are some with EDS, Hypermobility type caused by a different mutation on COL3A1 And then there are also mutations on COL3A1 which are not known to cause any problems at all So having a result that suggests there may be a genetic mutation on COL3A1 does not automatically mean you have VEDS
I found a hypermobile EDS doctor in Oklahoma City Fleak_eds Mar 6, 2024 • 9:18 AM Omg I live in OKC and have been looking for one! Thank you so much for this!! Game changer! I have been going to Florida for appts!
Atlanta recommendations - Ehlers-Danlos Syndromes - Inspire Be sure to get on the FB GA EDS support group - tons of Atlanta recommendations in the group documents, including several neurologists I went to Nassim Nabavi at Midtown Neurology and loved her - very EDS-informed, as well as thorough and kind
Tampa FL EDS Doctors - Ehlers-Danlos Syndromes - Inspire Looking for doctors in the Tampa area that have experience with EDS and Common Variable Immune Deficiency I recently moved here and need to establish my medical team of PCP, Cardiologist, Immunologist, GYN Oncologist, Gastro, and Orthopedic Spine Specialist (specifically neck)