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Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders - Inspire The Ehlers-Danlos Syndromes and Related Disorders Support Community connects patients, families, friends and caregivers for knowledge, support and inspiration This community is sponsored by the Ehlers-Danlos Society, an Inspire trusted partner
Physicians in North Carolina - Ehlers-Danlos Syndromes - Inspire The Ehlers-Danlos Society's Healthcare Professionals Directory is a great place to start when looking for providers in your area who have experience with EDS and HSD I also recommend checking out their Support Group and Charity Directory and searching for regional Facebook groups for people with EDS and HSD These groups can be super helpful
EDS Specialists Colorado - Ehlers-Danlos Syndromes - Inspire I have my own doctors in Boulder county that work better for me on EDS I used to go to a pain management specialist in Thornton He is aware of EDS His referrals are great At this point I just see my internist for everything He does know about EDS He also listens well and accepts my research I just found out he has another EDS patient who
2025 Global Learning Conference - Ehlers-Danlos Syndromes - Inspire Join other individuals and families with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) for up to three days of learning, collaboration, and networking The conference theme is "Teamwork", emphasizing the importance of multidisciplinary collaboration in managing EDS and HSD symptoms and comorbidities
Atlanta EDS doctors - Ehlers-Danlos Syndromes - Inspire I just moved to Georgia and just attempted to join the Northern Atlanta EDS support group I'm just waiting to hear something back, but thank you again SlapASmileOn :) I just wanted to ask Bugg and Cendawan to please share the information if you should find a doctor in the area who is willing to help treat EDS
EDS doctor in Pittsburgh, Pa. - Ehlers-Danlos Syndromes - Inspire Does anyone know of a good EDS Doctor in Pittsburgh, PA Hello Marlagrom, There is not one doctor or one type of medical specialty who is able to investigate or treat all the symptoms Ehlers-Danlos Syndromes (EDS) can cause as well as the common co-morbidities seen in those with EDS, such as Postural Orthostatic Tachycardia Syndrome (POTS) or Mast Cell Activation Syndrome (MCAS)
How does eds affect your sinuses? - Ehlers-Danlos Syndromes - Inspire I've gone to Dr Harrison for 15 years and he diagnosed me with EDS (albeit, last year) He's good I put him on the list But in listening to your problem, it sounds like Dr Maitland is the way to go She is the EDS champion She is now getting a steady stream of EDS patients And everyone is leaving happy to have seen her
EDS doctor in Buffalo, NY - Ehlers-Danlos Syndromes - Inspire I'm looking for an EDS MD in Buffalo who can help my 16 year old daughter with insomnia, migraines and joint pain Would Dr Kumar be helpful with those issues? I've also been thinking of taking her to the Connective Tissue Disorders clinic at Children's Hospital in Cincinnati
EDS Doctors in San Diego PLEASE! - Ehlers-Danlos Syndromes - Inspire You can also contact the local SD EDS support group The local EDS Group of Greater San Diego has meetings on the second Sunday of every month at 1 p m at the Cushman Wellness Center, Sharp Memorial Outpatient Pavilion at 3075 Health Center Drive, San Diego Meetings are held on the first floor
I found a hypermobile EDS doctor in Oklahoma City The therapy was $11,000 and it didn't help as much as I hoped There was some improvement in pain, but more pain with the tightness But EDS is chronic and probably will always bother me i n some way, unfortunately