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Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders - Inspire The Ehlers-Danlos Syndromes and Related Disorders Support Community connects patients, families, friends and caregivers for knowledge, support and inspiration This community is sponsored by the Ehlers-Danlos Society, an Inspire trusted partner
2025 Global Learning Conference - Ehlers-Danlos Syndromes - Inspire Join other individuals and families with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) for up to three days of learning, collaboration, and networking The conference theme is "Teamwork", emphasizing the importance of multidisciplinary collaboration in managing EDS and HSD symptoms and comorbidities
I found a hypermobile EDS doctor in Oklahoma City Fleak_eds Mar 6, 2024 • 9:18 AM Omg I live in OKC and have been looking for one! Thank you so much for this!! Game changer! I have been going to Florida for appts!
23 and me Col3A1 - Ehlers-Danlos Syndromes - Inspire Hello Getbent, Just be aware that while EDS, Vascular type is caused by a genetic mutation on COL3A1, so are some with EDS, Hypermobility type caused by a different mutation on COL3A1 And then there are also mutations on COL3A1 which are not known to cause any problems at all So having a result that suggests there may be a genetic mutation on COL3A1 does not automatically mean you have VEDS
How does eds affect your sinuses? - Ehlers-Danlos Syndromes You have EDS and allergies and can get GERD treated there if it has an immune system basis If you have mast cell, you will more than likely have GERD at some point in your life
Atlanta recommendations - Ehlers-Danlos Syndromes - Inspire Be sure to get on the FB GA EDS support group - tons of Atlanta recommendations in the group documents, including several neurologists I went to Nassim Nabavi at Midtown Neurology and loved her - very EDS-informed, as well as thorough and kind