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Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders - Inspire The Ehlers-Danlos Syndromes and Related Disorders Support Community connects patients, families, friends and caregivers for knowledge, support and inspiration This community is sponsored by the Ehlers-Danlos Society, an Inspire trusted partner
2025 Global Learning Conference - Ehlers-Danlos Syndromes - Inspire Join other individuals and families with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) for up to three days of learning, collaboration, and networking The conference theme is "Teamwork", emphasizing the importance of multidisciplinary collaboration in managing EDS and HSD symptoms and comorbidities
23 and me Col3A1 - Ehlers-Danlos Syndromes - Inspire Hello Getbent, Just be aware that while EDS, Vascular type is caused by a genetic mutation on COL3A1, so are some with EDS, Hypermobility type caused by a different mutation on COL3A1 And then there are also mutations on COL3A1 which are not known to cause any problems at all So having a result that suggests there may be a genetic mutation on COL3A1 does not automatically mean you have VEDS
General Discussion about Alcohol with EDs - Inspire General Discussion about Alcohol with EDs General discussion Hello to the brave EDS community, I am very intrigued to hear from the EDS community about people's attitudes and consumption of alcohol Are you comfortable with consuming alcohol at all? Do you think in terms of a 'limit' on alcohol consumption Or are you able to drink freely?
Got my 23andme. What next? - Ehlers-Danlos Syndromes - Inspire Just like EDS, you have to look at expression as well as what other issues they have going on If they have other metabolic issues that can interplay with MTHFR, such as a vWB or other Factor issues, not to mention things like COMT activity, and CBS regulation, then you essentially have a whole other set of things to consider
Looking For EDS Hypermobility Doctor In KY - Inspire Welcome to Inspire and to the EDS and HSD community! The Ehlers-Danlos Society's Healthcare Professionals Directory is a great place to start when looking for providers in your area who have experience with EDS and HSD
Looking for a doctor in Rhode Island who treats EDS. What type of doctor are you looking for? I'm in Massachusetts, so others are likely to have more helpful info than I, but there are two people very experienced with EDS who immediately come to mind They are both specialists, not general practitioners: Kevin Muldowney at Muldowney Physical Therapy, and Dr Pradeep Chopra who is a pain management specialist I have seen both speak and been seen
What is the best birth control option for someone with ehlers . . . - Inspire However, EDS and dysautonomia may mask certain signs and make it hard to trace your cycle Another important question is what your significant other can do to share the burden of contraception, especially when his partner has EDS In some countries, contraceptive pills for men are being trialled, as well as a temporary vasectomy with gel