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Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders - Inspire The Ehlers-Danlos Syndromes and Related Disorders Support Community connects patients, families, friends and caregivers for knowledge, support and inspiration This community is sponsored by the Ehlers-Danlos Society, an Inspire trusted partner
Physicians in North Carolina - Ehlers-Danlos Syndromes - Inspire The Ehlers-Danlos Society's Healthcare Professionals Directory is a great place to start when looking for providers in your area who have experience with EDS and HSD I also recommend checking out their Support Group and Charity Directory and searching for regional Facebook groups for people with EDS and HSD These groups can be super helpful
Duke Doctor who treats EDS? - Ehlers-Danlos Syndromes - Inspire I've been personally trying to educate Duke PT about EDS but it's been hit or miss (mostly miss) You can PM me if you want to chat about other local providers I'm about to see Lee Schuping who's at UNC Physical Medicine and whom my clinical geneticist, and Alan Spanos, says knows a lot about EDS and can really help on a practical level, but I
Looking For EDS Hypermobility Doctor In KY - Inspire Welcome to Inspire and to the EDS and HSD community! The Ehlers-Danlos Society's Healthcare Professionals Directory is a great place to start when looking for providers in your area who have experience with EDS and HSD
Use of Biologics to treat inflammation with EDS? - Inspire My EDs comes with dysautonomia, and MCAS, which can can cause demyelination issues… among other things, then it’s a bad cycle, and all your spots of previous injury are exacerbated… I mean, inflammation underlies a LOT of problems, and if you have damaged joints, it really is a bad spiral
EDS DOCTORS IN MAINE - Ehlers-Danlos Syndromes - Inspire Some with EDS have need of a Dermatologist or a Vascular Surgeon Some have a need for a Hematologist or Immunologist Some have a Podiatrist on their team or a High-Risk Obstetrician However, EDS and any co-morbid conditions present in you is going to determine what needs you have in your medical team
Need an EDS doctor in Memphis, TN - Ehlers-Danlos Syndromes - Inspire Also, my daughter, who has EDS POTS, is a student at Mississippi State and has found an outstanding PT working in Starkville at the Drayer Clinic The PT just moved to Meridian, MS and was previously at the Mayo clinic working with EDS patients He is great!!
EDS in Puerto Rico - Ehlers-Danlos Syndromes - Inspire I do not know of any EDS-knowledgeable doctors in Puerto Rico Most of us do not live where there are EDS experts so have to learn all we can about our condition and find doctors willing to learn with us and from us You could try contacting the other 15 members in this community who live in Peurto Rico You will need to send a friend request
Looking for a doctor in Rhode Island who treats EDS. I'm in Massachusetts, so others are likely to have more helpful info than I, but there are two people very experienced with EDS who immediately come to mind They are both specialists, not general practitioners: Kevin Muldowney at Muldowney Physical Therapy, and Dr Pradeep Chopra who is a pain management specialist
Oregon docs - Ehlers-Danlos Syndromes - Inspire The Ehlers-Danlos Society's Healthcare Professionals Directory is a great place to start when looking for providers in your area who have experience with EDS and HSD If you can't find what you're looking for in the directory, it is best to connect with others in your area who have EDS and HSD