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Gastrointestinal Concerns for EDS Patients - Mayo Clinic Connect Bloating and Distension Many patients with EDS report symptoms of being gassy, bloated or distended (these terms are all defined in the section below) These are often temporary sensations that occur after eating, go away on their own without any treatment, and do not require a visit to a health care professional For some EDS patients, however, abdominal bloating and distension are more
Sucralfate for gastroparesis | Mayo Clinic Connect I had 4 tests and all showed MALS, including the J hook appearance which was very telling and I was diagnosed officially in October last year I also have Fibromyalgia, Celiac Disease and other health issues as well I am back to square one with looking for another possibility for surgeon Are you in the MALS fb group?
Mast Cell Activation in Ehlers-Danlos Syndrome - Mayo Clinic Connect This post describes a review article (Mast cell disorders in Ehlers-Danlos syndrome) about the role of mast cells in Ehlers Danlos syndrome (EDS), which was published in 2017 in the American Journal of Medical Genetics: Seminars in Medical Genetics Mast cells are immune cells that are primarily located in tissues throughout the body including connective tissue which are key sites affected
Magnesium levels and epilepsy - Mayo Clinic Connect Hi Colleen,ive had grand mals for alot of years,my seizures have not been ina steady time frame ,might go few months then a year or so As ive gotten oldermy consumptionof magnesium and calcium has increased,i also have copd and had cancer,which caused me to get other problems,evenwith these meds my grand mals have been incresing From what ive
Surgical Issues for EDS and Hypermobility Disorders Authors: Dr Jason Lam Sharon Hennessey A question that often comes up during a medical visit for EDS HSD, “is there anything that I need to be concerned about for surgery?” Over the next series of posts here, we will address this question To begin, it is clear for individuals living with EDS and related hypermobility spectrum disorders, the journey through surgery can be fraught with
Post-MALS surgery - Mayo Clinic Connect I am 3 months post MALS surgery I would like to hear from anyone who has had the MALS surgery but has not felt any improvement I continue to eat very little as the pain and discomfort and exhaustion kick in by 3 or 4 PM in the afternoon and I can no longer eat for the rest of the day I manage to consume about 1600-1800 calories and 50 grams of protein a day It is very difficult to sleep
Abdominal pain and stress - Mayo Clinic Connect It could be a condition called Mals Which I was just diagnosed with However I have had my symptoms for years A Dr can do a cta of your celiac artery in your belly area to get a preliminary diagnosis If you even have it I would definitely go to a gastroenterologist as well Just to rule things out and give you piece of mind
Trying to decide whether to have Gallbladder Surgery: What next? By the way, I’m now suffering from recent, extreme MALS pain again Tomorrow I’ll have a procedure to blow the celiac artery open again The artery had a bad kink in it from the beginning, even after the ligament pressing on it was removed A stent at the kink has worked for 6 years now Looking forward to less or no pain
Prolonged phenobarbital usage and connection with dementia? So I've been on phenobarbital for nearly 30 yrs grand mals are controlled a few years ago I do have auras, lately I have had a ton of balance focus and memory issues neurology says the phenobarbital causes dementia in older folks and most likely this is my issue
VNS Battery replacement is it worth it? | Mayo Clinic Connect When Nico got his VNS at 11 years old, he having dozens of seizures a day and status events that would land him in the hospital a few times a month All while on 5 meds and 2 emergency neds He went straight to no seizures Over the next 9 years he had 2 grand mals, both caused by high fevers And he got down to 2 meds during that time