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Financial Assistance For Patients With Rare Diseases | NORD NORD’s Rare Caregiver Respite program was an absolute lifeline for our family this past year With the respite program, I was able to select a family friend who I trusted, who was already adequately trained to handle my daughter’s needs, and I could have her provide respite whenever I needed it The reimbursement process was easy, and payment was received promptly
Centers of Excellence - National Organization for Rare Disorders NORD is committed to breaking down silos and building bridges so that people living with a rare disease can achieve their best health and well-being Our belief is that the NORD Rare Disease Centers of Excellence program is the next big stride forward for rare disease patients and care, to improve health equity and create critical new connections to resources and specialists across our nation
List of Rare Diseases | A-Z Database | NORD What Is the NORD ® Rare Disease Database? The NORD Rare Disease Database is an inclusive and comprehensive list of rare diseases based on information from established rare disease ontologies and it is an ongoing project made possible by a close collaboration with MONDO, Orphanet, and Online Mendelian Inheritance in Man (OMIM) The NORD Rare Disease Database includes: NORD Rare Disease Reports
About Us - National Organization for Rare Disorders NORD was the first national nonprofit to represent all individuals and families affected by rare disease Today we’re the only organization working at the intersection of care, research, policy, and community for all rare diseases
Contact Us - National Organization for Rare Disorders Contact Us NORD is leading the fight to improve the lives of patients with rare diseases For more information or to learn more, use the contact details below or sign up for email communications here So that we can best assist you, please use the form below if you are seeking additional information from our team Please submit your inquiry only once to ensure a timely response
Rare Disease Research Grant Program | NORD Request for Proposals NORD’s Rare Disease Research Grants Program provides seed-money grants to qualified investigators for scientific and or clinical research The hope is that these studies ultimately will lead to new diagnostics, treatments, and or cures for rare diseases NORD’s program provides grants for the study of diseases for which there are few other sources of funding Grants
Patient Assistance Programs - National Organization for Rare Disorders Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford These programs provide medication, financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists
Sotos Syndrome - Symptoms, Causes, Treatment | NORD Learn about Sotos Syndrome, including symptoms, causes, and treatments If you or a loved one is affected by this condition, visit NORD to find resources and
Living with a Rare Disease | NORD NORD helps those living with rare diseases find patient assistance programs financial assistance programs and help them get a diagnosis