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List of Rare Diseases | A-Z Database | NORD What Is the NORD ® Rare Disease Database? The NORD Rare Disease Database is an inclusive and comprehensive list of rare diseases based on information from established rare disease ontologies and it is an ongoing project made possible by a close collaboration with MONDO, Orphanet, and Online Mendelian Inheritance in Man (OMIM) The NORD Rare Disease Database includes: NORD Rare Disease Reports
Financial Assistance For Patients With Rare Diseases | NORD NORD’s Rare Caregiver Respite program was an absolute lifeline for our family this past year With the respite program, I was able to select a family friend who I trusted, who was already adequately trained to handle my daughter’s needs, and I could have her provide respite whenever I needed it The reimbursement process was easy, and payment was received promptly
Centers of Excellence - National Organization for Rare Disorders NORD is committed to breaking down silos and building bridges so that people living with a rare disease can achieve their best health and well-being Our belief is that the NORD Rare Disease Centers of Excellence program is the next big stride forward for rare disease patients and care, to improve health equity and create critical new connections to resources and specialists across our nation
About Us - National Organization for Rare Disorders NORD was the first national nonprofit to represent all individuals and families affected by rare disease Today we’re the only organization working at the intersection of care, research, policy, and community for all rare diseases
Rare Diseases Support, Resources Help | NORD Can NORD help find a medical expert for my rare disease? Many patient organizations provide lists of medical experts Search NORD’s Organizational Database to find disease-specific patient advocacy organizations NORD Rare Disease Centers of Excellence are diagnosing and treating thousands of rare disease patients
Rare Disease Research Grant Program | NORD Request for Proposals NORD’s Rare Disease Research Grants Program provides seed-money grants to qualified investigators for scientific and or clinical research The hope is that these studies ultimately will lead to new diagnostics, treatments, and or cures for rare diseases NORD’s program provides grants for the study of diseases for which there are few other sources of funding Grants
Contact Us - National Organization for Rare Disorders Contact Us NORD is leading the fight to improve the lives of patients with rare diseases For more information or to learn more, use the contact details below or sign up for email communications here So that we can best assist you, please use the form below if you are seeking additional information from our team Please submit your inquiry only once to ensure a timely response
Donate - National Organization for Rare Disorders A grant from your donor-advised fund helps NORD provide vital care and services to the rare disease community Contact your fund manager or financial institution to recommend a gift to NORD (Tax ID: 13-3223946) and receive an immediate tax deduction Let us know of your gift at donate@rarediseases org so we can thank you for your generous support
About NORD Membership Network | NORD While some of these resources are free, the full range is only available to NORD network members We offer 2 levels of membership: Platinum Level represents the highest level of integrity and transparency for patient advocacy organizations involved in medical research, drug development, medical education, and registries