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National Organization for Rare Disorders | NORD It is the foundation upon which NORD was built NORD works with partners in the patient community, government, academia, and industry who share the ultimate goal of identifying, treating, and curing rare diseases In addition to the partnerships listed below, NORD works with many national partners to achieve its advocacy goals
About Us - National Organization for Rare Disorders NORD was founded after the passage of the Orphan Drug Act of 1983 (ODA) to formalize the coalition of patient advocacy groups that were instrumental in passing that landmark law Since then, NORD has been a national steward and a steadfast partner helping those who battle and care for rare disease feel seen, heard, supported, and connected
Financial Assistance For Patients With Rare Diseases | NORD NORD’s Rare Caregiver Respite program was an absolute lifeline for our family this past year With the respite program, I was able to select a family friend who I trusted, who was already adequately trained to handle my daughter’s needs, and I could have her provide respite whenever I needed it
Centers of Excellence - National Organization for Rare Disorders NORD is committed to breaking down silos and building bridges so that people living with a rare disease can achieve their best health and well-being Our belief is that the NORD Rare Disease Centers of Excellence program is the next big stride forward for rare disease patients and care, to improve health equity and create critical new
List of Rare Diseases | A-Z Database | NORD What Is the NORD ® Rare Disease Database? The NORD Rare Disease Database is an inclusive and comprehensive list of rare diseases based on information from established rare disease ontologies and it is an ongoing project made possible by a close collaboration with MONDO, Orphanet, and Online Mendelian Inheritance in Man (OMIM)
NORD Rare Disease Day | Official US Partner NORD was founded more than 40 years ago to advocate for equitable health policies that improve the lives of all rare disease patients and families Advocacy is what Rare Disease Day is all about, and we encourage you to use your own voice today in honor of this moment
How NORD Can Help - Resources, Financial Support, More | NORD Whether you need help getting a diagnosis, finding resources to assist in finding a specialist, finding a clinical trial, paying medical bills, or affording drugs, NORD is here We provide resources, rare disease information, and ways to get involved
Rare Diseases Support, Resources Help | NORD Other helpful resources include NORD’s state-insurance map, which provides state-specific resources related to health insurance, as well as resources offered by the Patient Advocate Foundation and Henry J Kaiser Family Foundation’s StateHealthFacts org
NORD Rare Disease Grant Program - National Organization for Rare Disorders By providing “Your Content”, you grant NORD a license to read, use, reproduce, adapt, modify, publish, translate, and distribute the content in our marketing materials and to all media “Your Content” must be your own and must not invade any third‐party’s rights