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National Organization for Rare Disorders | NORD National Organization for Rare Disorders NORD advances practical, meaningful, and enduring change so people with rare diseases can live their fullest and best lives Every day, we elevate care, advance research, and drive policy in a purposeful and holistic manner to lift up the rare disease community
Financial Assistance For Patients With Rare Diseases | NORD NORD’s Rare Caregiver Respite program was an absolute lifeline for our family this past year With the respite program, I was able to select a family friend who I trusted, who was already adequately trained to handle my daughter’s needs, and I could have her provide respite whenever I needed it The reimbursement process was easy, and payment was received promptly
List of Rare Diseases | A-Z Database | NORD What Is the NORD ® Rare Disease Database? The NORD Rare Disease Database is an inclusive and comprehensive list of rare diseases based on information from established rare disease ontologies and it is an ongoing project made possible by a close collaboration with MONDO, Orphanet, and Online Mendelian Inheritance in Man (OMIM)
Centers of Excellence - National Organization for Rare Disorders NORD is committed to breaking down silos and building bridges so that people living with a rare disease can achieve their best health and well-being Our belief is that the NORD Rare Disease Centers of Excellence program is the next big stride forward for rare disease patients and care, to improve health equity and create critical new connections to resources and specialists across our nation
About Us - National Organization for Rare Disorders NORD was the first national nonprofit to represent all individuals and families affected by rare disease Today we’re the only organization working at the intersection of care, research, policy, and community for all rare diseases
Living with a Rare Disease | NORD NORD helps those living with rare diseases find patient assistance programs financial assistance programs and help them get a diagnosis
Sotos Syndrome - Symptoms, Causes, Treatment | NORD Learn about Sotos Syndrome, including symptoms, causes, and treatments If you or a loved one is affected by this condition, visit NORD to find resources and
History of NORD - National Organization for Rare Disorders History of NORD In the late 1970s, individuals and families living with rare diseases felt alone and forgotten There was very little being done to study their diseases or develop treatments In the early 1980s, families, advocates, and leaders of several rare disease patient organizations formed an ad hoc coalition to focus attention on this
NORD Rare Disease Videos | Informational Videos About Rare Diseases The NORD Rare Disease Video Library houses educational videos on rare diseases for patients, caregivers, students, professionals and the public NORD works with medical experts and patient organizations to develop the videos, which are made possible by individual donations, educational grants and corporate sponsorship