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Optune pros and cons - Brain tumors - Inspire Optune is no longer part of his care plan, but I think it was a good choice at the time We were also considering more invasive treatments (clinical trials, etc ) which would have carried heavy side effects -- given that he felt pretty good, the Optune was far less invasive, caused no side effects, and allowed him to maintain quality of life
Is Optune worth the hassle and cost? - Brain tumors - Inspire Optune just received medicare approval last year They come every year and buy dinner at Moe's or Kentucky Fried chicken to give us an update-brain tumor support group (Lee County Florida)
Optune - how long can you use it? - Brain tumors - Inspire Given that Optune has recently been recommended to be added to Standard of Care treatment for GBM, I think many more trials will allow or include Optune use by trial participants Hope so anyway! I believe there is a planned trial to include Optune and PP65 for newly diagnosed GBM'rs to start this fall
Optune users - Brain tumors - Inspire Overall, Novocure Optune continues to post strong results and or is green-lighted for a growing list of solid mass tumors (lung, mesothelioma, pancreatic, recurrent ovarian, etc), of course, these aren't GBM, but I think they speak to the efficacy of TTFields as therapeutic mechanism against tumors Happy to answer any and all questions! Cheers
Optune - looking for candid feedback and opinions - Brain tumors - Inspire And the Optune probably gave him a little bit more time with us It didn't save his life, just like the Restricted Ketogenic Diet (he lost 115 pounds in seven months, June-Dec 2013, w o exercise and never gained a pound back) didn't save his life, but it saved HIM He gained his self-esteem and his self-determination
Optune Treatment in AUSTRALIA? - Brain tumors - Inspire Yes, Optune is available to newly diagnosed and recurrent GBM patients in the US In the European Union, Japan, Israel and Australia, it is available after recurrence
Optune Question - Brain tumors - Inspire She started Optune 3 weeks ago and only takes breaks for a few hours when we change the arrays every 3 days She was in pretty bad shape with a weak right side and speech impairment However, during her visit with her Radiation Oncologist, she heard the best news during this journey! Her tumor shrunk by 50%
Can anyone share with me their experience with the Optune? If you search Optune in this community you can learn allot My son used it from June 2016-July 2017 It probably gave him at least 6 months more of life He was the first patient in Palm Springs and we lived in a remote area of the desert so any problems that could be experienced with getting equipment and using the arrays we probably encountered He was always 95% compliant even through a
Optune user with an itchy scalp, Help - Brain tumors - Inspire I've been wearing optune since May and the itchniness is a problem I find changing the arrays more frequently helps Also, I suspect the itchiness comes from the tiny hairs on the scalp, and electric razors aren't great Last night i shaved my head in the shower using my husband's shaving gel I got a much closer shave and feel less itchy today
Optune experience - Brain tumors - Inspire I am going on over 2 years wearing the Optune device I know every cancer patient has different experiences, but mine is going the best it can Yes, it was a big choice to wear the Optune device and shave your head twice a week, but I feel it's well worth it for longevity Some tips, Carrying the device: Your shoulder can get sore carrying the