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Primary Lateral Sclerosis (PLS) FactSheet-1page How frequently does PLS occur? The incidence of PLS is rare, but the exact number is uncertain ALS affects two individuals per 100,000 each year, and tentative estimates put the annual PLS incidence rate at half a per cent of that number The median duration of PLS is approximately 20 years, while the duration of ALS is two to five years, so PLS
*Almost* diagnosed with PLS - ALS Support Community PLS doesn't convert to ALS ALS can appear as PLS during the early years Generally by year 5 even slow progressing ALS will exhibit lower motor neuron symptoms Bulbar ALS progresses quickly so they can generally diagnose Bulbar PLS after a few years It is my experience that PLS progression slows considerably after a period of time
Veterans with PLS VA disability | ALS Support Community The criteria for service connection for PLS are met because PLS is shown by the medical evidence to be a variant of ALS, which is presumed incurred during the Veteran's service 38 U S C A §§ 1110, 1131, 5107 (West 2002); 38 C F R §§ 3 102, 3 303, 3 318 (2012) REASONS AND BASES FOR FINDINGS AND CONCLUSION
My PLS story (long) - ALS Support Community My name is Rob and I am 35 yrs old, married and father of three teenage daughters I was diagnosed with PLS in early 2007 by Dr Appel My story begins in 2003 I had back surgery to correct a herniated disc I had no signs or symptoms of PLS at this point (atleast that I was aware of) My back surgery was a very traumatic experience
Bulbar onset PLS: how long before speech is gone? - ALS Support Community Yes, Michael has bulbar onset PLS, not ALS At least as far as the neurologist at the ALS Clinic can determine at this time, based on the (relatively) slow progression he has experienced But she said he'll have to go four or five years more without lower neuron involvement before she can definitively say it is PLS and not slow-developing ALS
PLS and the VA - ALS Support Community I was diagnosed with PLS 3 years ago Filed for service connected disability with local VBA, and was denied Filed again and provided letters from my two Neurologists (one form Mayo), numerous references from respected, reliable, and authoritative sources stating that PLS is a variant of ALS Denied again at the local VBA office
HSP vs PLS: Some General Info | ALS Support Community PLS distinctives: PLS does much less collateral damage, and is considered a pure motor neuron disease It only has 1 or 2 known genetic causes (Maybe I'll add the 3rd!) It can start in limbs or bulbar, and can progress througout the body It doesn't seem to be associated with urinary and bowel problems in most cases
PLS to ALS | ALS Support Community - alsforums. com PLS is generally given as a "probable" diagnosis because they give us four years to convert to ALS before giving it as a permanent diagnosis Most convert to ALS and a small percentage will stay PLS It is usually confusing if it is a slow progression, but the upside that is even if it is ALS, the progression often stays slow
PLS and VA | ALS Support Community Given the close relationship between ALS and PLS, it seems reasonable to assume that same link would exist with PLS At the very least the VA could check their computerized medical records and ascertain the rate of PLS (and other motor neuron disease) in veterans compared to the general population